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Michigan Survey Respondents Report that Trust and Respect Impact Care; Variations in Health Care Affordability Burdens

State: Michigan
Category: CHESS State Survey
Topic: Healthcare Access and Fairness

Summary

According to a survey of more than 1,350 Michigan adults conducted from June 30 to July 29, 2025, many residents have had inconsistent experiences accessing and affording the health care system in the past year. Among those respondents:

  • Over 2 in 3 (68%) experienced at least one health care affordability burden in the past year;
  • Nearly 4 in 5 (76%) worry about affording health care in the future;
  • Respondents living in households that include a person with a physical or cognitive impairment ration medication due to cost more frequently than respondents living in households without a person with a physical or cognitive impairment (40% versus 21%); delay or go without care due to cost more frequently (83% versus 59%); and experience more cost burdens due to medical bills (55% versus 30%); and
  • Thirty-four percent of respondents of color skipped needed medical care due to distrust of or feeling disrespected by health care providers; and
  • Fifty-six percent of all respondents think that people are treated unfairly based on their race or ethnic background somewhat or very often in the U.S. health care system.

Variations in Health Care Affordability Between Households

Factors like household income and composition impact how a person navigates the health care system. The median household income in Michigan in 2023 was $69,183.1 Michigan respondents in households earning less than $50,000 a year reported experiencing a health care affordability burden more frequently than wealthier households (see Table 1).

Respondents that earn less than $50,000 annually also more frequently reported experiencing a cost burden due to medical bills, like incurring medical debt, depleting savings, or sacrificing basic needs like food, heat, or housing compared to those earning $100,000 or more annually (45% versus 28%). Still, over half of respondents living in higher income households also faced affordability issues, indicating that these burdens affect all income groups. At least 69% of respondents across all income levels expressed concern about affording health care now or in the future.

Similar to income, household composition can also influence the types of challenges that people are exposed to when navigating the health care system. Households that include a person with a physical or cognitive impairment, for instance, interact with the health care system more often than others, which frequently results in greater out-of-pocket costs.2 Michigan respondents with a physical or cognitive impairment, or who live with a person with a physical or cognitive impairment, reported experiencing an affordability burden or concern more frequently than other respondents (see Table 2).

Additionally, 11% of respondents with a physical or cognitive impairment, or who live with a person with a physical or cognitive impairment, reported that they or their household member delayed getting a medical assistive device such as a wheelchair, cane, walker, hearing aid, or prosthetic limb due to cost, compared to only 3% of respondents without a physical or cognitive impairment who may have required one of these tools for temporary support.3

Variations in Health Care Affordability Between Demographic Groups

Research has shown that demographic differences persist in self-reported health status, access and affordability.4 This survey also revealed variations in reported affordability burdens between demographic groups. For example, Michigan respondents with a Bachelor’s or graduate degree reported experiencing a health care affordability burden less frequently than respondents with lower educational attainment. In contrast, respondents without a formal education beyond a high school diploma or GED reported experiencing a health care affordability burden (79%), and a health care cost burden due to medical bills (47%) more frequently than other respondents (see Table 3).

Likewise, respondents of color reported higher rates of many affordability burdens compared to white alone, non-Hispanic respondents (see Table 4). A small share of respondents also reported unique challenges to care that were unique to their backgrounds. Forty-five (2% of) respondents reported not getting needed medical care because they couldn’t find a doctor of the same background as them and 29 (2% of) respondents reported not getting needed care because they couldn’t find a doctor who spoke their language.

Differences in the frequency of reported health care affordability burdens and concerns by sex also emerged in the survey results (see Table 5). Women reported higher rates of experiencing at least one affordability burden in the past year (70% versus 65%); more frequently reported delaying or forgoing care due to cost; and reported higher rates of rationing medications by not filling prescriptions, skipping doses, or cutting pills in half. Although many respondents expressed concerns about health care costs, a higher percentage of female respondents also reported being worried about affording coverage or care compared to male respondents (80% versus 72%) and experiencing a cost burden due to medical bills (38% versus 35%).

Respondents that identify as sexually diverse also experienced affordability burdens, with 34% reporting rationing medication due to cost compared to 26% of respondents that are not a part of a sexual minority group (see Table 6). Members of these communities experience higher rates of disability and encounter unique challenges accessing health care and medications.5,6,7

Trust and Respect

Negative experiences in the health care system can increase mistrust, and whether a patient trusts or feels respected by their health care provider may influence their willingness to seek necessary care.8,9 In Michigan, 29% of respondents reported feeling that their health care providers never, rarely, or only sometimes treat them with respect, and 42% reported they were not confident in being able to find a doctor that they like or trust.

Overall, 39% reported distrust or perceived disrespect from their providers, and 22% went without care because of a lack of trust or perceived disrespect. Certain groups reported forgoing care at higher rates due to these experiences: while nearly a third (31%) of respondents enrolled in the Michigan Medicaid program reported going without care due to distrust or perceived disrespect, only 22% of individuals with employer sponsored insurance reported the same (see Table 7).

Twenty-nine percent (29%) of Michigan respondents reported feeling disrespected during a clinical encounter. When asked why they believe their providers did not treat them with respect, the most frequently cited reasons include: income or financial status (37%); race (26%); disability (18%); ethnic background (19%); and educational attainment (10%). In lesser numbers, some respondents also cited sexual orientation (7%) and experience with violence or abuse (5%).

When asked to describe how their identities or circumstances have impacted their ability to access quality, patient-centered care respondents offered a variety of examples, including:

  • “African Americans have a unique set of lab values related to racial stressors in hypertension, renal disease and diabetes but I have also faced discrimination due to my Pagan beliefs.”
  • “As a Mexican American queer transgender person, i have felt incredibly unsafe by the healthcare industry, especially because of how many ethical wrongdoings I experienced as an adolescent (within mental healthcare).”
  • “Because of our financial situation, we were limited on what healthcare we can afford, the unexpected bills we received, and the denial of our appeals were the cause of unexpected medical bills we had no choice but to pay even though we had no other means to pay it other than dip into our savings.”
  • “Being a near elderly woman, my dental care options are often limited due to dental some dental providers belief about the benefit of interventions for elderly and near elderly patients.”
  • “Being retired and on a fixed income makes it very hard to afford dental, vision and hearing coverage.”
  • “Experiencing unstable insurance coverage, it was difficult to get care. I was treated as though I was a stereotypical person about what happens during an appointment; some providers even appeared to assume things based on my background. That caused me to disregard seeking care until it was the last minute.”
  • “I am 26 and will be start to pay for my own insurance this winter, but I’m going to be careful going into it. A lot of times I feel my worries are downplayed/misunderstood because of my age and especially my gender.”

Negative experiences when seeking care can contribute to a lack of trust in the health care system, leading to poorer health outcomes and higher costs. Respondents reported that they believe that both individual practices and beliefs, as well as policies and practices built into the health systems are factors can impede the quality of care received. in fact, fifty-six percent (56%) of respondents reported that they believe that people are treated unfairly by the health care system due to their race or ethnicity either somewhat or very often. When asked why, respondents most frequently cited policies and practices built into the health care system (14%), the actions and beliefs of individual health care providers (17%), and an equal mixture of both of these factors (40%).

Nearly three in every four (73% of) Michigan respondents agreed or strongly agreed that the U.S. health care system needs to change. Interestingly, there is bipartisan support for government-led solutions for more information on the types of strategies Michigan residents support, see: Michigan Residents Struggle to Afford High Health Care Costs; Worry about Affording Health Care in the Future; Support Government Action across Party Lines, Healthcare Value Hub, Data Brief (August 2025).

  1. U.S. Census Bureau, U.S. Department of Commerce. (2023). Michigan Income in the Past 12 Months (in 2023 Inflation-Adjusted Dollars). American Community Survey, ACS 1-Year Estimates Subject Tables, Table S1901. Retrieved February 20, 2025, from https://data.census.gov/table/ACSST1Y2023.S1901?g=040XX00US39 ↩︎
  2. Miles, Angel L., Challenges and Opportunities in Quality Affordable Health Care Coverage for People with Disabilities, Protect Our Care Illinois (February 2021), https://protectourcareil.org/index.php/2021/02/26/challenges-and-opportunities-in-qualityaffordable-health-care-coverage-for-people-with-disabilities/ ↩︎
  3. As of 2024, most people with disabilities risk losing their benefits if they earn more than $1,550 a month. According to the Center for American Progress, in most states, people who receive Supplemental Security are automatically eligible for Medicaid. Therefore, if they lose their disability benefits, they may also lose their Medicaid coverage. Forbes has also reported on marriage penalties for people with disabilities, including fears about losing health insurance. See: Seervai, Shanoor, Shah, Arnav, and Shah, Tanya, “The Challenges of Living with a Disability in America, and How Serious Illness Can Add to Them,” Commonwealth Fund (April 2019),
    https://www.commonwealthfund.org/publications/fund-reports/2019/apr/challenges-living-disability-america-and-how-seriousillness-can; Fremstaf, Shawn and Valles, Rebecca, “The Facts on Social Security Disability Insurance and Supplemental Security Income for Workers with Disabilities,” Center for American Progress (May 2013), https://www.americanprogress.org/article/thefacts-on-social-security-disability-insurance-and-supplemental-security-income-for-workers-with-disabilities/; and Pulrang, Andrew, “A Simple Fix For One Of Disabled People’s Most Persistent, Pointless Injustices,” Forbes (April 2020),
    https://www.forbes.com/sites/andrewpulrang/2020/08/31/a-simple-fix-for-one-of-disabled-peoples-most-persistent-pointlessinjustices/?sh=6e159b946b71 ↩︎
  4. Mahajan, S., Caraballo, C., Lu, Y., et al. (2021). Trends in differences in health status and health care access and affordability by race and ethnicity in the United States, 1999-2018, JAMA, 326(7), 637-648. https://jamanetwork.com/journals/jama/fullarticle/2783069 ↩︎
  5. Alex Montero, Liz Hamel, Samantha Artiga, & Lindsey Dawson. (2024). LGBT Adults’ Experiences with Discrimination and Health Care Disparities: Findings from the KFF Survey of Racism, Discrimination, and Health. KFF. https://www.kff.org/racial-equity-andhealth-policy/poll-finding/lgbt-adults-experiences-with-discrimination-and-health-care-disparities-findings-from-the-kff-survey-ofracism-discrimination-and-health/ ↩︎
  6. Bosworth, Arielle, et al. (2021, July). Health Insurance Coverage and Access to Care for LGBTQ+ Individuals: Current Trends and Key Challenges. ASPE Office of Health Policy. https://www.aspe.hhs.gov/sites/default/files/2021-07/lgbt-health-ib.pdf ↩︎
  7. Casanova-Perez R, Apodaca C, Bascom E, et al. (2022, February 21). Broken down by bias: Healthcare biases experienced by BIPOC and LGBTQ+ patients. AMIA Annu Symp Proc. 2022;2021:275-284. https://pmc.ncbi.nlm.nih.gov/articles/PMC8861755/ ↩︎
  8. 8 Nanaw, J., Sherchan, J., Fernandez, J., Strassle, P., Powell, W., & Forde, A. (2024). Racial/ethnic differences in the associations
    between trust in the U.S. healthcare system and willingness to test for and vaccinate against COVID-19. BMC Public Health, (24), https://link.springer.com/article/10.1186/s12889-024-18526-6
    ↩︎
  9. Brown, C., Jackson, S., Marshall, A., Pytel, C., Cueva, K., Doll, K., Young, B. (2025). Discriminatory healthcare experiences and medical mistrust in patients with serious illness. Journal of Pain and Symptom Management, 67(4), 317-326. https://doi.org/10.1016/j.jpainsymman.2024.01.010 ↩︎

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