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Virginia Survey Respondents Report that Trust and Respect Impact Care; Variations in Health Care Affordability Burdens
Summary
According to a survey of more than 1,380 Virginia adults conducted from August 1 to August 19, 2025, many residents have had inconsistent experiences accessing and affording the health care system in the past year. Among those respondents:
- Nearly three-quarters (71%) experienced at least one health care affordability burden in the past year;
- Nearly 4 in 5 (72%) worry about affording health care in the future;
- Respondents living in households that include a person with a physical or cognitive impairment ration medication due to cost more frequently than respondents living in households without a person with a physical or cognitive impairment (38% versus 22%); delay or go without care due to cost more frequently (85% versus 62%); and experience more cost burdens due to medical bills (59% versus 33%); and
- Twenty- seven percent of respondents of color skipped needed medical care due to distrust of or feeling disrespected by health care providers; and
- Fifty-nine percent of all respondents think that people are treated unfairly based on their race or ethnic background somewhat or very often in the U.S. health care system.
Variations in Health Care Affordability Between Households
Factors like household income and composition impact how a person navigates the health care system. The median household income in Virginia in 2024 was $92,090.1 Virginia respondents in households earning less than $50,000 a year reported experiencing a health care affordability burden more frequently than wealthier households (see Table 1).

Respondents that earn less than $50,000 annually also more frequently reported experiencing a cost burden due to medical bills, like incurring medical debt, depleting savings, or sacrificing basic needs like food, heat, or housing compared to those earning $100,000 or more annually (44% versus 35%). Still, over half of respondents living in higher income households also faced affordability issues, indicating that these burdens affect all income groups. At least 72% of respondents across all income levels expressed concern about affording health care now or in the future.
Similar to income, household composition can also influence the types of challenges that people are exposed to when navigating the health care system. Households that include a person with a physical or cognitive impairment, for instance, interact with the health care system more often than others, which frequently results in greater out-of-pocket costs.2 Virginia respondents with a physical or cognitive impairment, or who live with a person with a physical or cognitive impairment, reported experiencing an affordability burden or concern more frequently than other respondents (see Table 2).
Additionally, 10% of respondents with a physical or cognitive impairment, or who live with a person with a physical or cognitive impairment, reported that they or their household member delayed getting a medical assistive device such as a wheelchair, cane, walker, hearing aid, or prosthetic limb due to cost, compared to only 4% of respondents without a physical or cognitive impairment who may have required one of these tools for temporary support.3

Variations in Health Care Affordability Between Demographic Groups
Research has shown that demographic differences persist in self-reported health status, access and affordability.4 This survey also revealed variations in reported affordability burdens between demographic groups. For example, Virginia respondents with a Bachelor’s or graduate degree reported experiencing a health care affordability burden less frequently than respondents with lower educational attainment. In contrast, respondents without a formal education beyond a high school diploma or GED reported experiencing a health care affordability burden (79%), and a health care cost burden due to medical bills (44%) more frequently than other respondents (see Table 3).

Likewise, respondents of color reported higher rates of many affordability burdens compared to white alone, non-Hispanic respondents (see Table 4). A small share of respondents also reported unique challenges to care that were unique to their backgrounds. Forty-six (3% of) respondents reported not getting needed medical care because they couldn’t find a doctor of the same race/ethnicity or cultural background as them and 37 (3% of) respondents reported not getting needed care because they couldn’t find a doctor who spoke their language.

Differences in the frequency of reported health care affordability burdens and concerns by sex also emerged in the survey results (see Table 5). Women reported higher rates of experiencing at least one affordability burden in the past year (74% versus 68%); more frequently reported delaying or forgoing care due to cost; and reported higher rates of rationing medications by not filling prescriptions, skipping doses, or cutting pills in half. Although many respondents expressed concerns about health care costs, a higher percentage of female respondents also reported being worried about affording coverage or care compared to male respondents (81% versus 63%). However, males reported that they experienced a cost burden due to medical bills at a higher frequency than females (43% of males and 38% of females).

Respondents that identify as sexually diverse also experienced affordability burdens, with 32% reporting rationing medication due to cost compared to 26% of respondents that are not a part of a sexual minority group (see Table 6). Members of these communities experience higher rates of disability and encounter unique challenges accessing health care and medications.5,6,7

Trust and Respect
Negative experiences in the health care system can increase mistrust, and whether a patient trusts or feels respected by their health care provider may influence their willingness to seek necessary care.8,9 In Virginia, 30% of respondents reported feeling that their health care providers never, rarely, or only sometimes treat them with respect, and 42% reported they were not confident in being able to find a doctor that they like or trust.
Overall, 41% reported distrust or perceived disrespect from their providers, and 24% went without care because of a lack of trust or perceived disrespect. Certain groups reported forgoing care at higher rates due to these experiences – with one quarter (25%) of respondents enrolled in Cardinal Care, the Virginia Medicaid program or holding employer-sponsored insurance reporting that they went without care due to distrust or perceived disrespect (see Table 7).

Thirty percent (30%) of Virginia respondents reported feeling disrespected during a clinical encounter. When asked why they believe their providers did not treat them with respect, the most frequently cited reasons include: income or financial status (38%); disability (17%); race (31%); gender or gender identity (5%); ethnic background (22%); and educational attainment (8%). In lesser numbers, some respondents also cited sexual orientation (9%), and experience with violence or abuse (5%)
When asked to describe how their identities or circumstances have impacted their ability to access quality, patient-centered care respondents offered a variety of examples, including:
| “I have had to choose to not go to the doctor for infections because I was afraid I would be unable to pay for it. Additionally, I feel that since I am female and overweight, my concerns at the doctor are brushed aside and ignored.”“I am Black and not all hospitals would treat me fairly because they believe I can’t afford the service but I have insurance always have.”“Our family’s financial situation changed in the last year. When we took our child to the pediatrician, she pushed us to get on WIC and not complain about the high cost of formula and how much money was lost if we had an unfinished bottle. When my husband expressed his concern about how this mentality was changing the feeding plan for our child, she harshly expressed that WIC was free so it would make the formula affordable for us.”“I have chronic pain from neurological damage sustained in a car accident. I’m also very tattooed, pierced and dress like a goth. When my pain flares up I cannot move and it’s debilitating. I am often treated like a drug seeker. It took almost 10 years of “treatment “before I was recommended for a spinal stimulator that reduced my pain down to nearly nothing. People judged my appearance and thought I just wanted painkillers. Even pharmacists would make snide comments. It was demeaning and caused depression episodes as well.” |
Negative experiences when seeking care can contribute to a lack of trust in the health care system, leading to poorer health outcomes and higher costs. Respondents reported that they believe that both individual practices and beliefs, as well as policies and practices built into the health systems are factors can impede the quality of care received. in fact, fifty-nine percent (59%) of respondents reported that they believe that people are treated unfairly by the health care system due to their race or ethnicity either somewhat or very often. When asked why, respondents most frequently cited policies and practices built into the health care system (14%), the actions and beliefs of individual health care providers (17%), and an equal mixture of both of these factors (40%).
Nearly three in every four (72% of) Virginia respondents agreed or strongly agreed that the U.S. health care system needs to change. Interestingly, there is bipartisan support for government-led solutions for more information on the types of strategies Virginia residents support, see: Virginia Residents Struggle to Afford High Health Care Costs; Worry about Affording Health Care in the Future; Support Government Action across Party Lines, Healthcare Value Hub, Data Brief (December 2024).
Notes
1. U.S. Census Bureau, U.S. Department of Commerce. (2024). Virginia Income in the Past 12 Months (in 2024 Inflation-Adjusted Dollars). American Community Survey, ACS 1-Year Estimates Subject Tables, Table S1901. Retrieved December 17, 2025, from https://data.census.gov/table/ACSST1Y2023.S1901?g=040XX00US39
2. Miles, Angel L., Challenges and Opportunities in Quality Affordable Health Care Coverage for People with Disabilities, Protect Our Care Illinois (February 2021), https://protectourcareil.org/index.php/2021/02/26/challenges-and-opportunities-in-quality-affordable-health-care-coverage-for-people-with-disabilities/
3. As of 2024, most people with disabilities risk losing their benefits if they earn more than $1,550 a month. According to the Center for American Progress, in most states, people who receive Supplemental Security are automatically eligible for Medicaid. Therefore, if they lose their disability benefits, they may also lose their Medicaid coverage. Forbes has also reported on marriage penalties for people with disabilities, including fears about losing health insurance. See: Seervai, Shanoor, Shah, Arnav, and Shah, Tanya, “The Challenges of Living with a Disability in America, and How Serious Illness Can Add to Them,” Commonwealth Fund (April 2019), https://www.commonwealthfund.org/publications/fund-reports/2019/apr/challenges-living-disability-america-and-how-serious-illness-can; Fremstaf, Shawn and Valles, Rebecca, “The Facts on Social Security Disability Insurance and Supplemental Security Income for Workers with Disabilities,” Center for American Progress (May 2013), https://www.americanprogress.org/article/the-facts-on-social-security-disability-insurance-and-supplemental-security-income-for-workers-with-disabilities/; and Pulrang, Andrew, “A Simple Fix For One Of Disabled People’s Most Persistent, Pointless Injustices,” Forbes (April 2020), https://www.forbes.com/sites/andrewpulrang/2020/08/31/a-simple-fix-for-one-of-disabled-peoples-most-persistent-pointless-injustices/?sh=6e159b946b71
4. Mahajan, S., Caraballo, C., Lu, Y., et al. (2021). Trends in differences in health status and health care access and affordability by race and ethnicity in the United States, 1999-2018, JAMA, 326(7), 637-648. Trends in Differences in Health Status and Health Care Access and Affordability by Race and Ethnicity in the United States, 1999-2018 | Health Disparities | JAMA | JAMA Network
5. Alex Montero, Liz Hamel, Samantha Artiga, & Lindsey Dawson. (2024). LGBT Adults’ Experiences with Discrimination and Health Care Disparities: Findings from the KFF Survey of Racism, Discrimination, and Health. KFF. https://www.kff.org/racial-equity-and-health-policy/poll-finding/lgbt-adults-experiences-with-discrimination-and-health-care-disparities-findings-from-the-kff-survey-of-racism-discrimination-and-health/
6. Bosworth, Arielle, et al., Health Insurance Coverage and Access to Care for LGBTQ+ Individuals: Current Trends and Key Challenges, ASPE Office of Health Policy (July 2021), https://www.aspe.hhs.gov/sites/default/files/2021-07/lgbt-health-ib.pdf
7. Casanova-Perez R, Apodaca C, Bascom E, et al, “Broken down by bias: Healthcare biases experienced by BIPOC and LGBTQ+ patients,” AMIA Annu Symp Proc. 2022;2021:275-284, Published 2022 Feb 21.
8. Nanaw, J., Sherchan, J., Fernandez, J., Strassle, P., Powell, W., & Forde, A. (2024). Racial/ethnic differences in the associations between trust in the U.S. healthcare system and willingness to test for and vaccinate against COVID-19. BMC Public Health, (24), 1084. Racial/ethnic differences in the associations between trust in the U.S. healthcare system and willingness to test for and vaccinate against COVID-19 | BMC Public Health
9. Brown, C., Jackson, S., Marshall, A., Pytel, C., Cueva, K., Doll, K., Young, B. (2025). Discriminatory healthcare experiences and medical mistrust in patients with serious illness. Journal of Pain and Symptom Management, 67(4), 317-326. Discriminatory Healthcare Experiences and Medical Mistrust in Patients With Serious Illness – ScienceDirect
Methodology
Altarum’s Consumer Healthcare Experience State Survey (CHESS) is designed to elicit respondents’ views on a wide range of health system issues, including confidence using the health system, financial burden and possible policy solutions.This survey, conducted from August 1 to August 19, 2025, used a web panel from Dynata with a demographically balanced sample of respondents who live in Virginia. Information about Dynata’s recruitment and compensation methods can be found here. The survey was conducted in English or Spanish and restricted to adults ages 18 and older. Respondents who finished the survey in less than half the median time were excluded from the final sample, leaving 1,385 cases for analysis. After those exclusions, the demographic composition of respondents was as follows, although not all demographic information has complete response rates:

Percentages in the body of the brief are based on weighted values, while the data presented in the demographic table is unweighted. An explanation of weighted versus unweighted variables is available here. Altarum does not conduct statistical calculations on the significance of differences between groups in findings. Therefore, determinations that one group experienced a significantly different affordability burden than another should not be inferred. Rather, comparisons are for conversational purposes. The groups selected for this brief were selected by advocate partners in each state based on organizational/advocacy priorities. We do not report any estimates under N=100 and a co-efficient of variance more than 0.30.
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