Across stakeholders and across political affiliation, health reform is always cast as being about the patient. From consumer-directed healthcare, to shared decision-making, to consumer assistance, what does it mean to really address consumers’ needs and preferences? How can we elevate the voice of the consumer and validate that this voice is one consumers trust to represent their interests?
To bring rigor to today’s healthcare debate, we provide an overarching framework for thinking about consumers’ touch points with respect to healthcare and provide evidence on consumers’ wants and needs for each, with discussion of how to amplify and support the consumer voice.
As our issue brief shows, there are numerous resources to help us understand consumers wants and needs. Below we list a few of our favorites and we welcome your additions.
What’s Behind the Door: Consumer Difficulties Selecting Health Plans, Consumers Union, 2012
Loewenstein, George, et al., "Consumers' Misunderstanding of Health Insurance," Journal of Health Economics, 32, no. 5 (September 2013): 850–862.
Engaging Consumers on Healthcare Cost and Value Issues, Consumers Union, 2014
Carman, Kristin, et al., "Understanding an informed public’s views on the role of evidence in making health care decisions," Health Affairs, Vol. 35, No. 4 (April 2016).
Sommers, et al., "Focus groups highlight that many patients object to clinicians' focusing on costs," Health Affairs, Vol. 32, No. 2 (February 2013).
Meaningful Consumer Engagement Toolkit, Community Catalyst