Data Brief | No. 67 | February 2020

Greater Illinois: 59% of Adults Experienced Healthcare Affordability Burdens in the Past Year

According to a survey of Illinois adults conducted from January 9 to January 17, 2020, 3 out of 5 (59%) residents in the Greater Illinois Counties faced high healthcare affordability burdens — experiencing one or more of the following issues within the prior 12 months.

1) Being Uninsured Due to High Premium Costs

We received too few responses at the regional level to provide a reliable estimate for this statistic.

2) Delaying or Forgoing Healthcare Due to Cost

Half (52%) of adults in the Greater Illinois Counties encountered one or more cost-related barriers to getting healthcare in the prior 12 months, including:

• 33%—Skipped needed dental care
• 32%—Delayed going to the doctor or having a procedure done
• 27%—Skipped a recommended medical test or treatment
• 27%—Avoided going to the doctor or having a procedure done
• 24%—Did not fill a prescription
• 21%—Cut pills in half or skipped doses of medicine.
• 13%—Had problems getting mental healthcare

Fewer residents reported difficulty in accessing addiction treatment. Moreover, cost was by far the most frequently cited reason for not getting needed medical care, exceeding a host of other barriers like transportation, difficulty getting an appointment, lack of childcare, and other reasons. 

3) Struggling to Pay Medical Bills

Other times, Illinoisans got the care they needed but then struggled to pay the resulting bill. In the prior 12 months, one-third (34%) of Greater Illinois Counties adults experienced one or more of these struggles to pay their medical bills:  

• 12%—Contacted by a collection agency
• 12%—Were unable to pay for basic necessities like food, heat or housing
• 11%—Used up all or most of their savings
• 8%—Borrowed money or got a loan or another mortgage on their home
• 7%—Placed on a long-term payment plan
• 6%—Racked up large amounts of credit card debt 

High Levels of Worry About Affording Healthcare in the Future

Residents of the Greater Illinois Counties also reported high levels of worry about affording healthcare in the future. About eight in ten (82%) of respondents reported being "worried" or "very worried" about one or more of these topics: affording nursing home and home care services (69%); costs of a serious illness or accident (64%); health insurance becoming too expensive (64%); costs when elderly (63%); costs of needed dental care (60%); prescription drug costs (55%) and losing health insurance (42%).

Dissatisfaction with the Health System and Support for Change

Residents of Greater Illinois Counties were extremely dissatisfied with the health system. Just 26% agreed or strongly agreed with the statement “We have a great health care system in the U.S.,” while 67% agreed or strongly agreed with “the system needs to change.” 

Respondents do see a role for themselves in solving problems. They reported actions they have already taken, like researching the cost of a drug beforehand (59%), as well as actions they should be taking—66% believe that taking better care of their personal health is one of the top things they can do personally to address affordability. 

But in far greater numbers they saw a role for their elected representatives. Examples of strategies that received support across party lines included (Total/Republican/Democrat/Neither):

• Make it easy to switch insurers if a health plan drops your doctor—(91%/92%/94%/88%)
• Show what a fair price would be for specific procedures—(90%/91%/92%/87%)
• Require insurers to provide upfront cost estimates to consumers—(89%/94%/88%/86%)
• Require drug companies to provide advanced notice of price insreases and information to justify those increases—(89%/93%/85%/88%)

The high burden of healthcare affordability along with high levels of support for change suggest that elected leaders and other stakeholders need to make addressing the cost of healthcare a top priority. Annual surveys can help assess whether or not progress is being made. 

Note: For survey methodology and state-wide data, see https://healthcarevaluehub.org/Illinois-2020-Healthcare-Survey/