Nationally, consumer worry about healthcare affordability has been well documented, but now—for the first time—a new survey looks specifically at how affordability concerns and ideas for action play out in Indiana.
Like many Americans, Indiana adults experience hardship due to high healthcare costs. All told, well over half (63%) of respondents1 experienced one or more of the following healthcare affordability burdens in the prior 12 months:
1) Being Uninsured Due to High Premium Costs
Nearly one-half (49%) of uninsured respondents cited “too expensive” as the major reason for not having coverage, far exceeding other reasons like “don’t need it” and “don’t know how to get it.”
2) Delaying or Forgoing Healthcare Due to Cost
More than half (56%) of all respondents reported delaying or going without healthcare during the prior 12 months due to cost:
Moreover, 24% of all respondents cited cost as the most frequently cited reason for them or a family member not getting needed medical care in the past year, exceeding a host of other barriers like difficulty getting an appointment, transportation and lack of childcare.
3) Struggling to Pay Medical Bills
Other times, respondents got the care they needed but struggled to pay the resulting bill. Two in five
(40%) experienced one or more of these struggles to pay their medical bills:
Of the various types of medical bills, the ones most frequently associated with an affordability barrier
were doctor bills, dental bills and prescription drugs. The high prevalence of affordability burdens
for these services likely reflects the frequency with which Indiana respondents seek these services.
Trouble paying for dental bills likely reflects lower rates of coverage for these services.
Indiana respondents also exhibit high levels of worry about affording healthcare in the future. Four in five
(83%) reported being “worried” or “very worried” about affording some aspect of healthcare in the future,
While two of the most common worries—affording the cost of nursing home or home care services
and medical costs when elderly—are applicable predominantly to an older population, they were most
frequently reported by respondents ages 35-54. This finding suggests that Indiana respondents may
be worried about affording the cost of care for both aging parents and themselves.
Worry about affording healthcare, generally, was highest among respondents living in lower- and
middle-income households, respondents of color and those living in households with a person with
a disability (see Table 1). More than 4 in 5 (85%) of respondents with household incomes of less than
$50,000 per year3 reported worrying about affording some aspect of coverage or care in the past
year. Still, the vast majority of Indiana respondents of all incomes, races, ethnicities and levels of ability
statewide are somewhat or very concerned.
Concern that health insurance will become unaffordable is also more prevalent among certain groups
of Indiana respondents. By insurance type, respondents with coverage that they have purchased
on their own through the healthcare marketplace and not through their employer, most frequently
reported worrying about affording coverage, followed by respondents with coverage through their
employer and those with Indiana Medicaid (see Figure 1).
Respondents with household incomes below $50,000 per year reported the highest rates of worry
about losing coverage, while those with household incomes between $50,000 and $75,000 reported
the highest rates of worry about affording coverage. Non-rural respondents and those living in
households with a person with a disability were more likely to be concerned about losing health
insurance specifically than their rural and non-disabled counterparts (see Table 2).
Concerns about affording coverage exceeded fears about losing coverage across all income groups,
disability statuses, geographic settings and coverage types.
The survey also revealed differences in how Indiana respondents experience healthcare affordability
burdens by income, age, geographic setting and disability status.
Income and Age
Unsurprisingly, respondents at the lowest end of the income spectrum most frequently reported
experiencing one or more healthcare affordability burdens, with nearly three-quarters (72%) of those
earning less than $50,000 per year reporting struggling to afford some aspect of coverage or care
in the past 12 months (see Figure 2). This may be due, in part, to respondents in this income group
reporting high rates of going without care and rationing their medication due to cost (see Figure 3).
Further analysis found that Indiana respondents ages 18-44 were more likely to go without care due
to cost than respondents ages 45 and up (see Figure 4). Respondents ages 18-44 also most frequently
reported rationing medication due to cost, compared to other age groups.
Respondents with Indiana Medicaid coverage reported the highest rates of going without care due
to cost and rationing medication (see Table 3). Still, over half of respondents with private insurance
coverage went without care due to cost (53%).
Indiana respondents of color reported higher rates of rationing medication and forgoing care than
white respondents. Fifty-nine percent of respondents of color reported going without care due to
cost, compared to 55% of white respondents (see Table 3). Further analysis showed that respondents
of color also reported slightly higher rates of challenges receiving mental health care, challenges
receiving addiction treatment and skipping needed dental care (see Figure 5).
Of all the demographic groups measured, respondents living in households with a person with a disability
reported the highest rates of going without care and rationing medication due to cost in the past 12
months. Nearly 7 in 10 (68%) respondents in this group reported going without some form of care and
40% reported rationing medication, compared to 50% and 25% of respondents living in households
without a person with a disability, respectively (see Table 3). Respondents living in households with a
person with a disability also more frequently reported delaying or skipping getting mental healthcare,
addiction treatment and dental care, among other healthcare services, than those in households without a
person with a disability due to cost concerns (see Table 4).
Those with disabilities also face healthcare affordability burdens unique to their disabilities—22% of
respondents reporting a disability in their household reported delaying getting a medical assistive
device such as a wheelchair, cane/walker, hearing aid or prosthetic limb due to cost. Just 9% of respondents without a person with a disability, who may have needed such tools temporarily or may
not identify as having a disability, reported having this experience.
Encountering Medical Debt
The survey also showed differences in the prevalence of financial burdens due to medical bills,
including going into medical debt, depleting savings and being unable to pay for basic necessities (like
food, heat and housing) by income, race, disability status and geographic setting. Fifty-five percent of
respondents of color reported going into debt, depleting savings or going without other needs due to
medical bills, compared to 38% of white respondents (see Table 5).
The rate of financial burden is even higher for respondents who have or live with a person with a
disability, with more than half (53%) reporting going into debt or going without other needs due to
medical bills, compared to 35% of respondents living in households without a disabled member.
Geographically, Indiana respondents living in non-rural counties reported higher rates of going into
debt or going without other needs due to medical bills (43%) than respondents from rural counties
(40%). In addition, respondents with Indiana Medicaid reported the highest rate of the above financial
burdens due to medical bills (53%) compared to respondents with all other insurance types.
In light of Indiana respondents’ healthcare affordability burdens and concerns, it is not surprising that
they are dissatisfied with the health system:
To investigate further, the survey asked about both personal and governmental actions to address
health system problems.
Indiana respondents see a role for themselves in addressing healthcare affordability. When asked
about specific actions they could take:
When asked to select the top three personal actions they felt would be most effective in addressing healthcare affordability (out of ten options), the most common responses were:
But far and away, Indiana respondents see government as the key stakeholder that needs to act
to address health system problems. Moreover, addressing healthcare problems is one of the top
priorities that respondents want their elected officials to work on.
At the beginning of the survey, respondents were asked what issues the government should address in
the upcoming year. The top vote getters were:
When asked about the top three healthcare priorities the government should work on, the top vote
Of more than 20 options, Indiana respondents believe the reason for high healthcare costs is unfair
prices charged by powerful industry stakeholders:
When it comes to tackling costs, respondents endorsed a number of strategies, including:
There is also remarkable support for change regardless of respondents’ political affiliation (see Table 6).
The high burden of healthcare affordability, along with high levels of support for change, suggest that
elected leaders and other stakeholders need to make addressing this consumer burden a top priority.
Moreover, the COVID crisis has led state residents to take a hard look at how well health and public
health systems are working for them, with strong support for a wide variety of actions. Annual surveys
can help assess whether or not progress is being made.
Altarum’s Consumer Healthcare Experience State Survey (CHESS) is designed to elicit respondents’ unbiased views on a wide range of health system issues, including confidence using the health system, financial burden, and views on fixes that might be needed.
This survey, conducted from October 6 to October 11, 2022, used a web panel from online survey company Dynata with a demographically balanced sample of approximately 1,335 respondents who live in Indiana. The survey was conducted in English or Spanish and restricted to adults ages 18 and older. Respondents who finished the survey in less than half the median time were excluded from the final sample, leaving 1,249 cases for analysis. After those exclusions, the demographic composition of respondents was as follows, although not all demographic information has complete response rates: